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The inspiring story of one little girl’s bravery in the face of an unrelenting disease
In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal.
Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight.
Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal.
Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why.
Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
- Sales Rank: #167676 in eBooks
- Published on: 2015-02-24
- Released on: 2015-02-24
- Format: Kindle eBook
Review
“Plain and affecting . . . concentrating on the emotional—rather than the medical—ordeal.” —Kirkus Reviews
“Deford is a masterly writer.” —The Washington Post
“[Alex] captures a brave child’s legacy as well as the continuing fight against the genetic disease. ‘You come away richer for the reading,’ one critic said in 1983.” —The New York Times
About the Author
Frank Deford is an author, commentator, and senior contributor to Sports Illustrated, which he has been writing for since the early 1960s. In addition, he is a correspondent for HBO’s Real Sports with Bryant Gumbel and a regular Wednesday commentator for National Public Radio’s Morning Edition. He has won both an Emmy and a Peabody Award for his broadcasting.
Deford’s 1981 novel Everybody’s All-American was named one of Sports Illustrated’s Top 25 Sports Books of All Time and was later made into a movie directed by Taylor Hackford and starring Dennis Quaid. His memoir Alex: The Life of a Child, chronicling his daughter’s life and battle with cystic fibrosis, was made into a movie starring Craig T. Nelson and Bonnie Bedelia in 1986.
In 2012 President Obama honored Deford with the National Humanities Medal for “transforming how we think about sports,” making Deford the first person primarily associated with sports to earn recognition from the National Endowment for the Humanities. He has also been awarded the PEN/ESPN Lifetime Achievement Award for Literary Sportswriting, the W.M. Kiplinger Distinguished Contributions to Journalism Award, and the Associated Press Sports Editors’ Red Smith Award, and has been elected to the National Sportscasters and Sportswriters of America Hall of Fame. GQ has called him, simply, “the world’s greatest sportswriter.”
Deford currently resides in New York City and Key West, Florida, with his wife, Carol. They have two grown children.
Most helpful customer reviews
53 of 53 people found the following review helpful.
my favorite book
By carrie
im a cf victim myself and i think alex was very brave she didnt let having cf get her down and tried to live a life as normal as possible after reading alex i have been able to cope better with my cf and understand it better i try to live as alex lived her life when i do my therapy every day i amuse myself by recalling alex's therapy sessions "not the down ones daddy!" oh i quite agree with alex that the down ones r totally the worse and i can really relate to this story and it makes me glad that someone is writing about cf and making people more aware of the disease
32 of 33 people found the following review helpful.
A testimony to a special child written with love & honesty
By Kcorn
I've never forgotten this book and have re-read it many times. Deford somehow manages to show how devasting cystic fibrosis was to his daughter, how it sapped her energy and stole so much normalcy from her life. At the same time, he shows how Alex Deford's spirit remained shining so much of the time, serving as an inspiration to those who loved her and who were forced to bear witness as the disease invaded her body. This book pierced my heart and soul and showed me the power of Alex's spirit - and the enduring love of her father. Few writers are as riveting to read as Frank Deford.
26 of 27 people found the following review helpful.
Gut-wrenching
By Robert Huffstedtler
I am perhaps overly sensitive, but there were very few chapters in this book that I managed to read without breaking down and sobbing. Being familiar with Deford's voice from his NPR commentaries makes it all the worse, because as I read it, I heard it narrated in his voice, which made it all the more personal.
I had some vague conception of cystic fibrosis before reading this, but no idea just how horrible it really is. The book is written in a very conversational style. Mr. Deford is to be commended for his openness about the full range of emotions he experienced throughout the nine years of his daughter's life.
The book is quite short, which turns out to be a mercy. It is one of the best books I have read, but I can't imagine having to read it again.
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